Meal Train Plus for

The Hubble Family

Updates

Houston

Posted Jan 23, 2020 by Katherine Sivanish

Jordana was accepted into a come emergence facility in Houston. They were flew down on Monday. Here is the update from Jordana’s aunt. We are absolutely thrilled to be in Houston! Jordana has made so much progress already, and it's only Day 3! She arrived at Nexus Children's Hospital in Houston with her mother on Monday. Her ALERT flight was fairly uneventful except for her usual throwing up, which we now believe was caused by the specific combination of meds that she was on. Her new doctor, who as helped over 400 children in Jordana's situation recover, began switching up her meds as early as Tuesday and we have noticed an amazing difference from that small action alone. According to her new team of doctors, Jordana is now considered to be in a 'minimally conscious' state. Rather than being in a continuous coma, she now suffers from what her doctor called a 'Disorder of Consciousness,' which, of course, is the product of her Diffusal Axonal Brain Injury. Perhaps most importantly, she is smiling! And laughing! And, at times, she seems to recognize family members by both sight and sound. We are so excited about this progress and can't wait to see what other miraculous things our little girl has in store for us. #jordanastrong #redmeansstop

The Hubble Family
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update 12/11

Posted Dec 11, 2019 by Katherine Sivanish

"Not much to update, we see small improvements daily which gives us hope. She works hard with PT, OT & speech. Still waiting to get into a coma emergence facility." Thank you all so much for your support. There are some openings for dinner deliveries next week if you are able to help out.

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Update 12.3

Posted Dec 3, 2019 by Katherine Sivanish

Jordana’s situation has changed very little. She is still in a coma, but her vitals are good and she is breathing on her own, and for that we are very grateful. A gastronomy tube (G-Tube) was surgically placed through her abdomen and into her stomach last week for feeding purposes. Due to the extent of her brain injury, her pediatric neurologist was very clear: If an adult brain sustained the same amount of damage, the chances of recovery would be zero. The biggest thing we have going for us is simply the fact that Jordana is a child. At this point in time, Jordana’s team of doctors at the Montana Children’s Hospital in Kalispell have decided that the next course of action is to enter Jordana into a coma emergence program. Unfortunately, there are very few hospitals that participate in such a program, so Jordana will most definitely have to be sent out of state. The decision has yet to be made as to when and where that will be. In the meantime, we continue to be encouraged by the progress our little girl is making outwardly. She sees therapists daily for such evaluations, and she appears to intentionally respond to sound, touch, and movement. Her eyes open a little more every day. She is able to make slight postural changes and she seems to enjoy rides in her chair. We spent Thanksgiving at the hospital. It was hard, but we’re thankful we had the opportunity to come together as a family and spend the holiday with our sweet girl. We remain hopeful and are overwhelming grateful to the community for all the support our little girl has received 💕🖤💕 #jordanastrong 🛑 Red means STOP 🛑

The Hubble Family
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Update from Jordana’s mom

Posted Dec 2, 2019 by Katherine Sivanish

“We are working on getting Jordana into a coma emergence rehab program out of state, this will take a few days. Her hearing test is scheduled for tomorrow”

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Update from Jordana’s Aunt

Posted Nov 26, 2019 by Katherine Sivanish

Jordana had surgery at noon Monday to insert the G-tube which is a feeding tube directly into her abdomen. While in surgery they discovered she has an ulcer in her stomach but otherwise all went well and she is recovering. Her MRI results last week were quite disheartening. Her condition is a severe case of Diffuse Axonal Injury and can be compared to severe Shaken Baby Syndrome. However, although her diagnosis is not promising, her reactions are and bilateral body movements and tongue movements are hopeful. Vo (Veronica) is meeting with Jordana's team of doctors tomorrow and we hope to have more information overall at that time. I want to extend my personal gratitude towards everyone who has stepped up to make meals and those who are sending love and prayers our way. Our sweet girl needs them. I work full time at Whitefish Credit Union, but am taking care of her brother and sister M-Th and then Vickie and Laramie help with everything in between. The kids are processing the circumstance as best they can- they were immediately behind Jordana when she was hit so you can imagine how traumatic that was for them. Again, this is going to be a LONG road for Jordana and our family. We are heartbroken. Your support means everything! Thank you!!!❤❤ Jordana strong shirts are available: https://jordanastrong.itemorder.com/sale

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MRI

Posted Nov 20, 2019 by Katherine Sivanish

We didn’t get good news from the MRI. Jordana Hubble remains in critical condition and her brain damage is widespread. Her neurologist described it as extreme Shaken Baby Syndrome. It’s technical name is Diffuse Axonal Injury (DAI). It is on the severe end of the spectrum. If Jordana wakes up, she will need long term care. We have set up an account at Whitefish Credit Union in her name for this purpose. Universal Athletics will be operating a T-Shirt fundraiser on behalf of Jordana’s school. When I have more information about that I will post it here. We are, of course, still hoping for the best possible outcome, but we are unsure as to what that will be. As you can imagine, this has been quite a devastating blow. Our hearts are broken. Because of this news we are updating the donation goal to $20,000. We are so thankful for all of your support. We love you Jordana. #jordanastrong

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Jordana update 11.19

Posted Nov 20, 2019 by Katherine Sivanish

The latest update on Jordana. She still is in an induced coma. They have taken her off of the ventilator and have her on a cpap machine. They want her to start breathing on her own. She still has a collapsed lung that they will be working on to try to get it open. She is making small progress. At this point it is a waiting game to see how far she will recover. The family once again wants to thank everyone for their thoughts and prayers and all the support that they are receiving from everyone and the community.

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Update Sunday 11/17

Posted Nov 17, 2019 by Katherine Sivanish

Jordana is pretty stable this morning. Blood pressure up, O2 at 95%. Still working on her infection in her lung and reinflating it. MRI is at 10:30. Later today they will start to back off sedation, to see if Jordana can breathe on her own. The family is very touched and very appreciative of all the love and support.

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